User Charges for facilities available for CP, Down and Autism affected children

INTRODUCTION

Information regarding registration for Multimode Early Medical Intervention Therapy of small children with Cerebral Palsy / Autism Spectrum / Down Syndrome

• UDAAN / INDIRA only agrees to make the MMT available WITH LEAST INCONVENIENCE TO THE PARENT, EITHER AT UDAAN OR INDIRA OR AT ASSOCIATED INSTITUTIONS.
• We will also try to arrange substantial concession / sponsorship, etc. as part of our Charitable Trust principles, as per economic standards of the parents, especially for Indian citizens resident in India
• We will also assist in various logistical problems as far as we can.
• The parent or legal guardian must choose to avail of the same by voluntary informed written consent.

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Duration of Therapy (CP)

UDAAN MMT Timeline:

Plan of HBOT based MMT for CP

1. Intensive Standard Therapy for 8 months, daily except Sunday, second and last Saturday and Statutory Govt. notified Holidays
2. HBOT for 40 days at Apollo Hospital , one session per working day, starting Day 1
3. Additional 20 sessions during 5th month after 4th month if desired.
4. CT-cum-SPECT Fusion Scan of Brain before HBOT and at 8 months.
5. Additional Therapies where indicated, on extra payment as applicable.
6. Corrective surgery whenever required for contracture / deformity

OPD FEE for Children with Cerebral Palsy, Down Syndrome
and Autism Spectrum Disorders (w.e.f. 20/01/2008)

EXPENSES DURING REGISTRATION & INITIAL ASSESSMENT:

MEDICAL CHECKUP FOR HBOT FITNESS

• Pediatric checkup from Panel Pediatrician (Charges as applicable are payable directly to the doctor's clinic).
• ENT checkup from panel ENT Specialist (Charges as applicable are payable directly at the doctor's clinic).

CHARGES OF MMT for CP: See our mmtcost page.

Group 4

STANDARD THERAPY: Special Education +/ Speech Therapy +/ Occupational Therapy

ADDITIONAL INFORMATION

1. Children paying on a month-to-month basis only, must make payment before start of the month
2. Arrangement for Boarding and Food: Initial stay: Initial stay at a guest house for 5 days during evaluation (Monday to Saturday): Rs.500 per day for non-A/c room with attached bath or Rs. 1200 per day for A/C room with bath / TV / phone Food cost extra.
   Food costs based on personal choice. Guesthouse meals may cost approximately about Rs.250 per person per day for basic food. Cost could vary as per individual choice, and for special foods for children with specific problems.

Hyperbaric Therapy for CP

1. 1.5 ATA pressure for 90 minutes, using 100% Oxygen for 60 minutes, one session every working day for 40 sessions, except Sundays, coded as HBOT.
2. 1.3 ATA pressure for 90 minutes using ambient air throughout, one session a day every working for 40 sessions, except Sundays, 2nd & last Saturday, and compulsory Govt. holidays, coded as HBA
3. Cost of HBOT 1.5 ATA with 10% Oxygen is subject to decision of the tertiary care hospital where children are referred to. Cost mentioned is the prevailing one given to children referred by UDAAN-INDIRA, currently (August 2008) is about Rs.65000 for 40 sessions while 40HBAs cost about Rs.40000
4. In Autism: Even though some authorities suggest 1.5 ATA 100% Oxygenation, we are concerned about Oxygen Free Radical damage in brain in these children who are already deficient in their Free Radical Defense mechanisms. Laboratory facilities to assess Free Radical onslaught or Glutathione levels are not easily available in India.
   In spite of that, parents who wish to opt for the same for their child may avail of it on their own risk at the HBOT center at a cost of Rs.1,35,000/-.

Statements, Precautions, Warnings and Selection Criteria

Each of the modes of therapy are known and practiced in different parts of the world, with safety and efficacy. However, HBOT and Acupuncture, are still classified under Experimental Therapies. What UDAAN is trying to achieve is to bring all these modes of therapy under one roof in the best interests of a CP child, for the benefit of those parents who wish to avail of them under their own risk after giving us informed written voluntary consent.

All children volunteered for the therapy should preferably be aged between 1st and preferably 6th birthday. We can do other ages but prefer not to. This is because Leukodystrophy is claimed to start developing in the Ischemic area of brain by the 5th year in most cases, and continues to progress for some years. There is no way to predict how much a child could improve, though we believe that the results will be best before 5 years age. Hence, if HBOT is given after age of 5 years, benefit may not be up to expectations. As per limited data available, until the age of about 7 to 10 years, the other modes of experimental therapy may be able to be of some benefit at least.

We prefer such parents of children who are educated, with good knowledge of English, to understand each mode of therapy on offer, and both parents (preferably) are willing to give written informed voluntary consent for each mode of therapy for which the child may be considered suitable.

The parent MUST UNDERSTAND that the new therapies on offer have limited reports on success and are experimental. They are generally considered safe when used by persons trained in its use. UDAAN is fortunate to have a trained group of specialists in various institutions of Delhi who have agreed to support this venture. UDAAN only agrees to facilitate availability of these therapies to parents who desire to avail of the same for their child. We do not guarantee any cure or remarkable degree of improvement though we believe that the results we hope to achieve should equal or surpass any achieved so far in India, and should be on par with the best achieved anywhere in the world.

Follow Up

For further details