Summary: UDAAN, a premier disability
management institution of Delhi, INDIA announces the availability of
Multimode Early Medical Intervention Therapy of
Cerebral Palsy. We make available at
subsidized rate, sequential therapy with one-to-one Standard therapy, combined with initial 40 sessions of Hyperbaric
Oxygen Therapy, followed up two months later with 60 sessions of CP-Specific
Acupuncture and 90 days of Unani/Ayurvedic Herbal Neuro-restorative agents.
Botox / Phenol Nerve Block injection therapy is given rarely if unavoidable; we
prefer tendon lengthening surgery, as it costs only a fraction, more but the
effects are permanent, in contrast to only a few months of relief with
Botox/Phenol, in most cases. We seek collaboration with Satellite Centers to
carry on the same type and standard Standard Therapy after our preliminary
Therapy. Last updated January 21, 2007
Announcing UDAAN Multimode Early Medical
Intervention Therapy for small children with Cerebral Palsy
You must have wondered, that if the world was
making so much progress in science, why wasn't something more being done to help
improve the quality of life of a person with cerebral palsy.
Our hypothesis: CP of ischemic origin may still
have a penumbra of injured tissues in brain till the age of about 4-5 years
before it undergoes Leukodystrophy and becomes permanently damaged. If we give
all the above multimode therapies before 4 years of age in CP children where
SPECT scans show a penumbra, we may be able to reverse much of the damage and
give a much better quality of life in future than is possible with any one
therapeutic mode given alone.
WHAT IS MULTIMODE THERAPY
THIS
IS NOT A CLINICAL TRIAL AND HAS NO AIM TO BE ONE.
We guarantee nothing except
our sincere help and organizational skills in the best interests of a
special need child.
We offer some of the newer
modes of therapy at subsidized cost for those parents/legal guardians,
who, knowing fully well that these are still experimental
therapies, give informed written voluntary consent to avail of these
therapies, at their own risk, for helping their children / wards under our
guidance and help.
.
We started the world's first Multimode Therapy for CP and the results show an
a satisfactory degree of success, suggesting that we
may be on the right track, and should do more work in this area to establish the
protocols more scientifically with a lot more data.
It was earlier thought that if infants in the womb or
during labor or soon birth suffer brain damage, it was a permanent damage
that the child has to bear life long. But, latest SPECT
scans have shown that in the brain of children born with
cerebral palsy of ischemic cause, there may or may not be a relatively small
zone of central necrosis (dead brain tissue), surrounded by a large Penumbra
of half dead but revivable, electrically dead tissue, which, on clinical
grounds, gives an identical symptom complex as the necrotic tissue. That is
why, even today, standard Text Books of Medicine define cerebral Palsy as a
Non-Progressive Permanent Brain damage. This appears to be questionable in
today's context.
We found that there are a number of medical intervention
therapies available in the world as well as in India, that if given in
sequence to very small children with cerebral palsy, could recover a lot of
lost grounds.
Recent studies show that Hyperbaric
Oxygen Therapy (HBOT) can enhance the oxygen carrying capacity of plasma
and tissue fluid from 0.3 ml/100 ml to 4 ml or more/100 ml, an increase of
more than 10 fold. This increased tissue oxygenation has been shown to
revive the electrically dead but physiologically half dead Penumbra zone, to
produce long lasting neurological recovery in the CP child. In India, this
facility in the civilian sector is available at Apollo Hospital, New Delhi.
For this, we also need special infant size oxygen delivery hoods and system,
which costs about Rs.1 lakh for a pair. The Belgian Business Association has
donated to us the said amount, and the complete oxygen assembly (2 nos.)
have already arrived and are in regular use since the last 10 months.
Unani / Ayurvedic literature is
replete with mention of specific indigenous drugs that improve the
metabolism and recovery of damaged brain cells. The first preliminary study
on the efficacy of Unani Therapy in improving Cognitive functions still
further after HBOT, had a successful and encouraging
endpoint. Consequently, the Vice Chancellor of Hamdard University:
one of the foremost centers for Unani medicine, has kindly agreed to
associate with UDAAN, and to permit the Faculty of Medicine to examine and
give need based Unani / Ayurvedic Neuro-restorative agents under their
direct supervision, to the children with CP. The initial results were
promising. Hence, now the Ministry of Health, Government of India, is
funding a special project on it at UDAAN through Hamdard University
Acupuncture is an ancient
technique to relieve pain. This technique allows children to overcome their
limb pain and do a superior grade of physiotherapy. One of the staff members
of UDAAN is an expert of acupuncture for CP, and we now have a steady stream
of children and even adults who use it and are benefited..
Botox
injections are a nerve poison, that when injected in controlled doses
into spastic muscles, relaxes them for months, so that the child is able to
use them near normally. That enables a superior grade of physiotherapy to be
started to prolong the benefit. This facility is available in Delhi, at a
cost of about Rs.15000/-. Almost similar results may be possible with Phenol
Nerve Block at about Rs.2000/-; however, it may cause muscle necrosis or
abnormal sensations, and is risky to use repeatedly, whereas Botox causes
selective muscle block and may be used repeatedly if using the newer low
protein batches. Moreover, it is our experience that the magical immediate
relief takes away the enthusiasm and drive for continued intensive OT/PT in
the minds of the parent and child, leading to poor Neuro-muscular
development, and reversal of relief within a few months in many cases.
The total cost per child of eight months of MMT, inclusive
of Hyperbaric Oxygen therapy for 40 sessions, comes to about Indian Rs.2.4
lakhs (About US $6000), depending on therapeutic modes availed of.. However,
we offer substantial subsidy (40 to 50%, rarely more in exceptional cases)
to Indian children with the help of donations / sponsorships / aid received.
For details, see http://www.udaan.org/multimode/cost.html
International recognition
of our services to the disabled: UDAAN or its website is listed in the
following notable sites, attesting to its usefulness to persons or health
workers working with special need persons and especially children.
Refer a CP or Autism affected child to UDAAN for our Multimode Therapy for
3 months (Std. Therapy + HBOT)
Send one or more of your therapists (Each must be of a different branch,
e.g. OT / PT / Special Educator / Speech Therapist) for one month for Phase
I Training to observe how we carry out Multimode Therapy and also be trained
in its theoretical background. We will train your therapist (s) for one
month free of cost on the new techniques we use. The boarding / lodging /
food and other miscellaneous expenses must be borne by the organization or
the candidates.
The child will return to your organization within 3 months, on completion
of HBOT, to carry out the follow up therapies by therapists trained by us.
The child will be advised to revisit UDAAN about 2 to 3 months later, for
another 3 months if the parents wish to also avail of the follow up
CP-Specific Acupuncture + Unani Therapy besides additional HBOT
sessions.
The previously trained therapists will also be requested to come for Phase
II Training of one month for more advanced techniques, along with hands on
training. The therapist should come accompanied by the child.
As a Sponsor / Donor
Sponsor a child for the total 6 months of Multimode Therapy
project
Sponsor HBOT phase of one child
Sponsor the SPECT Scan of a child before and after HBOT
Sponsor a child for six months other than for HBOT
Donate a suitable land in South East
Delhi (within about 10 to15 km of Nehru Place, New Delhi, in a reasonable
good surrounding / locality) for a permanent place of its own for
FSMHP-UDAAN. The name of that centre may be kept as the INDIRA - <Name of
Sponsor> Centre for Multimode Therapy of CP. (INDIRA
= Institute
for Neurodevelopmental
Disabilities
Interventional
Research
Activities).
We have donors who have agreed to design and fund the building if we can get
the land. The donor of the land would be allowed to nominate one person as a
Trustee of FSMHP, to ensure that the land is always used for the purpose for
which it was intended.
ANY OTHER WAY THAT YOU WISH TO HELP US: e.g. Cash /
Equipment for disability management, Special large key computer to train
disabled persons; a portable electric generator, etc.
Donations in Indian currency may be sent directly by Cash or
Crossed cheque in the name of "FSMHP"
payable at Delhi, addressed to Dr. A Mukherjee, Trustee - FSMHP, A-59 Kailash
Colony, New Delhi 110048, INDIA. Indian Donors will get income tax rebate under
section 80G of the IT Act as granted to FSMHP.
Persons abroad who wish to pay in foreign
currency may send their contributions to us directly by crossed cheque / bank
draft in the name of "FSMHP-Foreign"
payable at New Delhi. This is our official Bank Account (in Corporation Bank,
Greater Kailash - II, New Delhi, which is recognized by the Home Ministry, Govt.
of India, for receipt of donations in foreign currency contributions by us under
the Foreign Currency (Regulation) Act.
Thanking you and with best regards
For FSMHP & its UDAAN Multi-Mode Therapy Project Contact: Dr. A Mukherjee (See below)
Contact
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