A project of Foundation for Spastic and Mentally Handicapped Persons
Proudly presents the NEURODEVELOPMENTAL DISABILITIES PORTAL OF INDIA Because Special Need Children deserve another fighting chance to enhance their Quality of Life
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OUR MISSION
"I walk slowly, but I never walk backward." - Abraham Lincoln
Over 100000 or more innocent persons in India, including more than 10,000 infants and children aged less than 5 years, are languishing in a self imposed imprisonment since birth only for a minor fault.
Their crime was that they happened to be present inside their mother's womb when some known or unknown factor destroyed discrete parts of their infantile brain.
They are often born with near normal intelligence but defective control over their body parts. With only such a minor fault, they are sentenced to spend the rest of their life within the confines of a disobedient body, neglected, shunned and forgotten by society.
Each day, children affected with Cerebral Palsy (CP) or Autism Spectrum Disorder (ASD) yearn for that speck of elusive freedom of mind, body and spirit that can light up their lives.
DISORDERS MANAGED
"Not everything that steps out of line, and thus 'abnormal,' must necessarily be 'inferior." - Hans Asperger Cerebral Palsy
Cerebral Palsy (CP) is the end result of brain injury in a child during pregnancy, or during or soon after birth, where the predominant effect is loss of control over body parts and limbs. The unused limbs gradually develop increasing degrees of stiffness and contractures. These children may have a variable extent of intellectual, speech and vision abnormalities also. Many suffer from epilepsy.
CP affects 1 in 1000 new born children, which means that over 1,00,000 or more affected children and adults. Modern resuscitative techniques in high class hospitals may be indirectly contributing to an increased incidence by saving abnormal fetuses that would otherwise not have survived birth.
Standard Rehabilitation centers provide established Physical, Speech and Special Education Therapies, and that is where the buck often stops. Autism Spectrum Disorder (ASD)
Autism, genetic disorder, affects more than 1 in 100 children. They exhibit loss of acquired skills, speech and communication abilities, and demonstrate abnormal psychosocial behavior, with attention deficit, hyperactivity, aloofness, self destructive behavior, and often reduced or no response to commands even from their near and dear ones. It is believed to be triggered by industrial waste based contamination of food and water, some infections, some drugs and atmospheric pollution.
What this Website Offers
This website is dedicated to parents of special need children, to try and explain in simple language some common brain related disabilities, their therapies including some medical experimental therapies, e.g. MB12, DAN Protocol, HBOT, Stem cells, etc.
Standard Therapies are the sheet anchor of Rehab for CP, Autism, MH. They help raise residual brain and body functions to their peak level to improve quality of life (QOL). THEN comes the stagnation.
That is where Regenerative Medicine, using Stem cell & Hyperbaric Oxygen therapy to revive some damaged but not dead brain can add functionality and enhance QOL where no such possibility existed earlier.
Regenerative Medicine
Modern medical science has much more to offer these children to continue to improve their brain function development rates, over and above what these standard therapies can ever hope to achieve. That can enable many more children to leave the confines of a locked room at home, go out into society, and have a successful and economically fruitful existence.
This is an area that UDAAN has been working on diligently since the last decade, to provide affordable medical advances that further enhance what standard therapies alone cannot achieve.
RESEARCH AND RECOGNITION
"I do not suffer from Autism, but I do suffer from the way you treat me." -Tyler Durdin
At UDAAN, we're committed to unfetter the spirit of freedom inherent in the heart of every differently abled child.
The nature of our multifaceted endeavors manifests itself through our commitment to the following tenet: Education, Access, Innovative early medical interventions
Dr. James Neubrander, father of MB12 Therapy in Autism, USA.
Dr. Daniel Rossignol, DAN Physician and International Authority of HBOT in ASD
Dr. Paul Harch, International authority on HBOT & President, Int. Hyperbaric Association
Delhi Institute for Functional Imaging
Religare SRL Labs.
Government's recognition of our efforts
Received IT PAN with IT Exemption under Section 80G for donations in the name of "FSMHP".
Registered under the Persons With Disabilities Act, Govt. of India.
Member of National Trust for the Welfare of Persons with CP, Autism and MR
Recognized & aided by M/o. Social Justice & Empowerment, Govt. of India since Mar. 2000
Registered under the FCRA Act to receive foreign currency payments in the name of "FSMHP-Foreign".
URGENT BULLETIN
UDAAN has just received the
Drugs Controller of India permission to start the MB12 Injection study in Autism, using the India made international standard 25 mg/ml preservative free MB12, made specifically and only for research by UDAAN, with technical guidance of Dr. James Neubrander, our Honorary Consultant. See www.udaan.org/autism/proforma.html for further details.
Our Experimental Therapy Project of Stem Cell usage in CP and Autism, is also on track
Our NOIDA center for Rehab / Schooling for Autism/CP is now admitting students. Contact Dr. Rahul Nigam on Cell: +919910153579, for details or Write to admin @ udaan.org with CC to anand @ udaan.org
or Phone UDAAN (+91-11-41621137)
Organised by UDAAN for the Disabled, Delhi
International Recognition of our efforts
HBOT in CP: 9 years of experience, Paper invited for presentation at the 7th International Symposium on HBOT, July 2010, Irvine, California, USA. Based on our extensive work involving four different hyperbaric pressures and two oxygen levels, to try and repair injured brain in children with CP, along with detailed analysis, we were awarded the coveted "Winner" award in the category: "Hyperbaric Doctor of the Year (2010)" by the Richard Neubauer Research Institute (Father of clinical HBOT in USA), in whose memory the award is given. (See full paper on www.youtube.com using the search terms "udaan hbot study cp")
To contact us:
UDAAN for the Disabled®
C-27 Dayanand Colony; Lajpatnagar - 4;
New Delhi 110024, INDIA
HQ.: 61 Deshbandhu Apartments
Kalkaji; New Delhi 110019; India
Phone: +91-9811157839; E-mail: admin@udaan.org
Donors and Sponsors.:
Donors in India may kindly contribute to our efforts by crossed cheque/bank draft in the name of our Trust: FSMHP or, Foundation for Spastic and Mentally Handicapped Persons®. Donations to FSMHP are Income Tax exempt U/s. 80G of the IT Act. Donors from abroad are requested to send their contributions in the name of our FCRA Registered name of FSMHP-Foreign, payable at Corporation Bank, GK-II at New Delhi.