A project of Foundation for Spastic and Mentally Handicapped Persons
Proudly presents the NEURODEVELOPMENTAL DISABILITIES PORTAL OF INDIA Because Special Need Children deserve another fighting chance to enhance their Quality of Life
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OUR MISSION
"I walk slowly, but I never walk backward." - Abraham Lincoln
With incidece of Autism Spectrum near about 1:100, CP near 1 to 2:1000, Down Syndrome incidence increasing due to modern compulsion mandated late pregnancies, the risks of begetting a special need child is increasing by the day. For far too long, the hopes of affected parents for relief for their child has been dashed to the ground and trampelled over by most (unfortunately archaic) prestigious Therapy Institutions, especially in India, with the disheartening statement that accept what has happened, do standard therapy and hope for the best .... in short: GET LOST! There is nothing that can be done.
AUTISM HOUR - Every Month
UDAAN for the Differently Abled at Delhi, Akhil Foundation of USA, CCAW New Delhi and Dr. Praveen Saxena of Hyderabad, are joining hands to set up an AUTISM HOUR each month with INTERACTIVE Audio-Video Webinars for one hour EVERY 2nd Saturday, starting 9th June 2012, from 8.30 PM Indian Standard Time to 9.30 PM Indian Standard Time, corresponding to morning in USA andf afternoon in UK. The proceedings will be recorded and telekast 12 hours later. Logistics
The webinar will cover one important topic each month, e.g. parenal diagnosis, clinical diagnosis, clinical assessment, biochemical assessment, standard rehabilitation, dietetics, micronutrient support, MB12, chelation, hbot, stem cell therapy, and so on.
The main speaker will be one of the world's foremost authorities, and a member of MAPS (See www.medmaps.org)
The other panelists will include Ms. Manisha Lad (Parental concerns/experience and diet), Dr. Arun Mukherjee (Early Medical Interventions incl. Biochemoical Testing and Micronutrient balance, MB12 Clinical Research, HBOT/mHBOT, Stem Cell Research, etc), Dr. Deepak Gupta (Diagnosis, Counselling, Standard management, Biochemical therapies), Dr.Praveen Saxena (Standard Management, Chelation, etc). The panelists will facilitate asking the specialist speaker relevant questions or topics to be explained, and where necessary, translate it into lay-persons language, including in Indian language, for the audience to understand better.
The audience will need a broad band Internet connection and a microphone.
The audience will be able to use their microphone to ask topic related questions and get instant replies.
The audience will be able to see the speaker, the four panelists, and Powerpoint slides if any, and listen in on all conversations and talks, whether by the speaker, panelists or questions asked by ANY member of the audience..
There will be a nominal one time Registration charge, followed by a monthly subscription of about $30 to be an active participant in that month's webinar, to cover costs of web server expenses, transmission costs, speaker's fees, and other logistic costs.
Members need to register first. Then they will receive the link to the webinar every month. On clicking on it, they will be asked to pay online through credit card through secure online transaction for that webinar (about $30) to get the password to login.
Details are being worked out and will be available within 3rd week of this month, hopefully. Keep watching this place
DISORDERS MANAGED
"Not everything that steps out of line, and thus 'abnormal,' must necessarily be 'inferior." - Hans Asperger Cerebral Palsy
Cerebral Palsy mainly affects muscle control, compounded by a variable extent of mental impairment, hearing disturbance, visual disturbance, emotional and psycho-social maladjustments. The cause is ofter ultimately due to hypoxia and inflammation of brain, which may or maynot be capable of reversal with Regenerative Medicine.
Modern resuscitative techniques in high class hospitals may be indirectly contributing to an increased incidence by saving abnormal fetuses that would otherwise not have survived birth.
Standard Rehabilitation centers provide established Physical, Speech and Special Education Therapies, and that is where the buck often stops. Autism Spectrum Disorder (ASD)
Autism, a genetic but not necessarily hereditary disorder, aggaravatyed by environmental abnormalities or pollutants in food - water - drug - air chain, is believed to affect more than 1 in 100 children (latest is 1 in 87: to be confirmed). Brain biopsies in animal models and humans have shown that by 6 months of age, the axons from one nerve cell to other parts of brain do not develop the high degree of branching offshoots from the main fiber that a normal brain develops. PET Scans of brain have shown an abnormal enlargement of Amygdala that reaches a peak by two years of age, and the degree of enlargement compared to normal brain then persists through life.
These children apparently progress normally till the age of 2 to 3 years, and then exhibit loss of acquired skills, speech and communication abilities, and demonstrate abnormal psychosocial behavior, with attention deficit, hyperactivity, aloofness, self destructive behavior, and often reduced or no response to commands even from their near and dear ones.
Standard Therapies are the sheet anchor of Rehab for CP, Autism, MH. They help raise residual brain and body functions to their peak level to improve quality of life (QOL). THEN comes the stagnation.
That is where Regenerative Medicine, using Stem cell & Hyperbaric Oxygen therapy to revive some damaged but not dead brain can add functionality and enhance QOL where no such possibility existed earlier.
Regenerative Medicine
Modern medical science has much more to offer these children to continue to improve their brain function development rates, over and above what these standard therapies can ever hope to achieve. That can enable many more children to leave the confines of a locked room at home, go out into society, and have a successful and economically fruitful existence.
This is an area that UDAAN has been working on diligently since the last decade, to provide affordable medical advances that further enhance what standard therapies alone cannot achieve.
What this Website Offers
This website is dedicated to parents of special need children, to try and explain in simple language some common brain related disabilities, their therapies including some medical experimental therapies, e.g. MB12, DAN Protocol, HBOT, Stem cells, etc.
UDAAN is working to bring scientific, protocol based studies on Stem Cell Therapy under Helsinki Protocol, for Neurodevelopmental Disabilities as well as Osteoarthrosis, COPD, Non-healing diabetic foot ulcers, progressive treatment failure neurodegenerative or acquired pathologies in brain of adults. The Government Regulatory Guidelines (2012) and Laws in this respect are still in the Draft stage, and much work needs to be done, but we are following it up, as we wish to do it right.
RESEARCH AND RECOGNITION
"I do not suffer from Autism, but I do suffer from the way you treat me." -Tyler Durdin
At UDAAN, we're committed to unfetter the spirit of freedom inherent in the heart of every differently abled child.
The nature of our multifaceted endeavors manifests itself through our commitment to the following tenet: Education, Access, Innovative early medical interventions
Collaborating Specialists, Guides and Institutions
Dr. James Neubrander, father of MB12 Therapy in Autism, USA.
Dr. Paul Harch, International authority on HBOT & President, Int. Hyperbaric Association
Dr. Daniel Rossignol, DAN Physician, President of MAPS and International Authority of HBOT in ASD
Dr. Pierre Marois, lead medical authority behind the landmark McGill University study of HBOT in CP, Lancet 2001
Delhi Institute for Functional Imaging
Religare SRL Labs.
Government's recognition of our efforts
Received IT PAN with IT Exemption under Section 80G for donations in the name of "FSMHP".
Registered under the Persons With Disabilities Act, Govt. of India.
Member of National Trust for the Welfare of Persons with CP, Autism and MR
Recognized by M/o. Social Justice & Empowerment, Govt. of India since Mar. 2000
Registered under the FCRA Act to receive foreign currency payments in the name of "FSMHP-Foreign".
URGENT BULLETIN
UDAAN has received the Drugs Controller of India permission to start the MB12 Injection study in Autism, using the India made international standard 25 mg/ml preservative free MB12, made specifically and only for research by UDAAN, with technical guidance of Dr. James Neubrander, our Honorary Consultant. See www.udaan.org/autism/proforma.html for further details.
Our Humanitarian Therapy Projects on Adult Stem Cell usage in Neurodevelopmental Disabilities and some adult disabilities is being readied, pending finalisation of ICMR Guidelines 2012 and the passage of corresponding governing laws.
Our NOIDA center for Rehab / Schooling for Autism/CP is at full steam ahead and is now admitting students. Contact Dr. Rahul Nigam on Cell: +919910153579, for details or Write to admin @ udaan.org with CC to anand @ udaan.org
or Phone UDAAN (+91-11-41621137)
Organised by UDAAN for the Differently Abled, Delhi
International Recognition of our efforts
HBOT in CP: 9 years of experience, Paper invited for presentation at the 7th International Symposium on HBOT, July 2010, Irvine, California, USA. Based on our extensive work involving four different hyperbaric pressures and two oxygen levels, to try and repair injured brain in children with CP, along with detailed analysis, we were awarded the coveted "Winner" award in the category: "Hyperbaric Doctor of the Year (2010)" by the Richard Neubauer Research Institute (Father of clinical HBOT in USA), in whose memory the award is given. (See full paper on www.youtube.com using the search terms "udaan hbot study cp")
To contact us:
UDAAN for the Disabled®
Dr. Arun Mukherjee, MD (Medicine), Director
Dr. Anand Arya, B.Pt, Center-in-Charge
Ms. Amruta Gore, MBA (Biotec), Manager: R&D and Clinical Research Coordinator
C-27 Dayanand Colony; Lajpatnagar - 4;
New Delhi 110024, INDIA;
Tel: +91-11-41621137;
E-mail: admin@udaan.org
HQ.: 61 Deshbandhu Apartments
Kalkaji; New Delhi 110019; India
Phone: +91-9811157839; Email: arun@udaan.org
Donors and Sponsors.:
Donors in India may kindly contribute to our efforts by crossed cheque/bank draft in the name of our Trust: FSMHP or, Foundation for Spastic and Mentally Handicapped Persons®. Donations to FSMHP are Income Tax exempt U/s. 80G of the IT Act. Donors from abroad are requested to send their contributions in the name of our FCRA Registered name of FSMHP-Foreign, payable at Corporation Bank, GK-II at New Delhi.