Summary: UDAAN, a premier institution of
Delhi, INDIA announces the availability of Multimode
Early Medical Intervention therapy of Cerebral Palsy. However, the
success of Multimode Therapy depends upon proper selection of cases with promise
and safety. It is also necessary to choose children who can be followed up for 5
or more years at least, before more definitive opinions can be given about the
benefits of this regime. Last updated January 21, 2007
Selection of children for Multimode Early
Medical Intervention Therapy for Cerebral Palsy
The parents /legal guardians of the child must be sufficiently educated
and intelligent to understand that this multimode therapy is based on
theoretical considerations, based on individual limited published data on
benefits seen cp or similar muscle spastic conditions. Many of the therapies
are still considered experimental. The parent / legal guardian has to give
us informed written witnessed voluntary consent to subject his/her
child to receive the Multimode therapy, before any other point can be
considered.
Medical data with us suggests that a child with cp of ischemic origin, aged
less 5 years, has the best chances of significant recovery; older
children do have improvement, but not as much as in smaller children.
Hence, that is why we prefer children aged 1 to 3 years, and preferably
those less than 5 years of age. Demonstration of SPECT scan proven
ischemic penumbra is considered a very important marker for the HBOT phase
of multimode therapy. However, many CP children have what is technically
called "SPECT within normal limits", since tiny patchy lesions are
very difficult to pick up with equipment available.
The Multimode Therapy regime as envisioned by us, will last for eight
months of intensive therapy phase, followed by life long maintenance therapy
phase at home or as the parent / legal guardian decides. During the MMT
period, the child must be a resident of Delhi, so that proper follow
up can be done.
Though Multimode Therapy can be done at multiple institutions once the
proper guidelines are established, this is not the case as of today. This is
the first venture of its kind in the world, and hence there are no
guidelines available. So we will have to trust our expertise, judgment and
play it by the ear. That means each child must be constantly under the
supervision of our trained staff throughout the 6 months, in the best long
term interests of the child.
The parent has to give a guarantee of transport facilities for his/her
child as required throughout the period.
The child must have a definitive diagnosis of cerebral palsy (of
ischemic origin), certified by a competent authority.
The child must be medically fit, as certified by our panel of
paediatricians, or staff and any other specialist we may need to refer to.
Children selected for HBOT must be fit as regards diseases of ear / nose /
throat.
The child should not be suffering from uncontrolled epilepsy,
tuberculosis, chronic skin disease, asthma, diabetes, chronic allergic
respiratory disorders, chronic bowel disease, or any other chronic
debilitating or communicable disease that could be a threat to the child or
another child.
The authorities behind UDAAN reserve the right to stop Multimode
Therapy for any child, if :
- in the opinion of any specialist, the child does not seem to be benefiting
from it
- multimode therapy seems to be having any adverse effect on that child
- the parent / guardian is not cooperating with the Multimode authorities in
carrying out instructions at home
The parent / guardian reserves the right to withdraw from the
project at any time without giving UDAAN any cause. However, we would like
to know the cause of withdrawal if any, though we cannot insist on it.
Finances are always a problem in a costly of this kind, and we would like
to provide as much subsidy to as many children as we possibly can. The
actual cost of Multimode therapy for one child, inclusive of HBOT, cost of
Botox, Acupuncture equipment, three sets of Acupuncture needles, transport
costs, Salary of Special Educator and Physiotherapist, salary of helper
staff, documentation expenses, HBOT mask assembly, etc. comes to an average
of about Rs 2.4 lakhs per child. We have managed through grants,
donations and sponsorships to reduce it substantially and can offer
subsidy to the extent of 40 to 50 % (Conditions apply). Click
here for details
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